Her mouth remains agape due to a combination of both gravity from the slight tilt of her bed & the positioning of the metal contraption on either side of her jaw. The jaw detractor is in place with two pins that penetrate the skin just behind the chin and the hinge of the jaw, respectively. On each side of her face, those pins are connected by a long rod with brackets. Beneath the skin is a surgical break on each side of the lower mandible so that, when the tool is used to crank forward the pin behind the chin, the entire lower structure of her face will move millimeters at a time.
Everly has about 2 inches of medical tape under her chin hiding the scar where Dr. Matthews accessed her mouth and augmented muscles under the tongue allowing it to lay forward instead of pointing straight up. Her open mouth reveals results of the surgery as the tip of the tongue can be clearly seen. It was too far in the back of her mouth to see previously. She has a string attached to her tongue that runs outside the mouth and secured to the right side of her face by more tape so that, if the tongue slides back and causes airway blockage, her care providers can easily pull it back up.
Her right arm now has a PICC line, a more secure IV that runs through a blood vessel up her arm. This stabilizes a pathway for the paralytic, narcotic, and fluids she receives. Her heart and lung leads are still in place on her torso as they have always been since her birthday. Another IV enters her left foot secured heavily by several layers of more tape. This IV remains capped, ready in case the need arises to introduce more medication as her PICC line can only handle 3 mediums at a time.
Her right leg has a reprieve from the oxygen lead and now only has identification anklets loosely fitted on it. The oxygen lead is now attached to her left hand wrapped by purple gauze. She remains supported underneath by a thick pillow filled with moldable putty that contours around her body giving support and preventing ulcers that could arise if there were more pressure points.
She will be re-positioned every few hours while maintaining a pillow around the top of her head, protecting the device on her face from disruption.
The nurses prick her heal every 12 hours or so to check her blood-gas levels, adjusting the ventilator's settings up or down depending on the results. They will slowly reduce her drug dosages each day. As of Sunday, Dr. Matthews will return to begin the process of slowly torqueing the detractor. He will visit every day after that to review progress.
I know that is a long, descriptive account of where we are right now. I needed to get it all out. I saw the relief it gave Lauren to write about everything and I, quite honestly, want to copy her. The above was for me, I wanted to explain to others what I must see right now when I look at my daughter. Now, I want to talk about everyone reading this post.
If you have gotten this far...wow! You truly care about our family. It is POWERFUL. It is MEANINGFUL. It is GODLY. Words of gratitude seem shallow and don't possess the ability to fully articulate the way we feel towards you all. We have received so much love through messages, letters, prayers, gifts, and offers help in any way, that Lauren are overwhelmed...in a very good way.
We are not ashamed to ask for your continued prayers and support as we have experienced so abundantly your willingness to serve our family during this time. I want to reiterate our sincere desire to reflect that same love back to you all. Please let us know if there are prayers we can lift up for you as we pray over Everly. We want to include you in our prayers as much as you all have been so diligent with including us in your own.
In my opinion, whether you believe in Jesus as the Son of God and means of salvation or not, you are being Christ-like in the kindness you have shown to my family. I can't say thank you enough. It is my deepest desire that everyone reading this will seek truth with an open mind and heart, considering The Bible as a source. My faith and my own continuously maturing search for truth through Jesus strengthens my steadfast resolve that there is value in a relationship with God.
We are all inundated with examples of people spreading hate, callousness, and hypocrisy. Not nearly enough do we see stories of pure unabashed love being spread without judgments or agendas. You all are such a story. Lauren and I have a church family, particularly our community group, showering us with support. Our local friends have been quick to unselfishly offer up time and resources to our family. Across the country, we have family praying us through our pain and fear.
Friends from college and high school, with years of silence separating us from being involved in their lives, have shown up in droves via messages of support. Some going as far as telling us they will travel to
I believe such actions reflect perfectly the message Jesus imprinted on the world. My hope is that Lauren and I KEEP IT GOING. Spreading the love you all have given us to others who need it. I ask all who read this to KEEP IT GOING. Even your smallest gestures and seemingly miniscule efforts can have enormous impacts on the recipients. I have felt this firsthand.
When I look back at how the first ecclesia (church) developed as just a gathering of people wanting to spread the love of Jesus, I ask "what is the big difference between them and the church universal now? How did 5,000 people communicate the life of a carpenter's son so successfully that it became the basis of faith for most of the civilized world?" I believe the answer is how they loved each other and others. I see that towards my family now. So many people showing so much love, what if we could magnify that to the masses? How would the world's view of Christians change? If everyone simply identified Christ-followers by how we love each other and others, wouldn't that draw more people near? Wouldn't you want to be a part of that faith family? There is warmth and comfort knowing so many will always be there to support us. I want the same for all my loved ones.
So, to sum up this seemingly endless essay, KEEP IT GOING. It's a charge I put on myself. It's a request I ask of you all. The amazing love you have shown my family, KEEP IT GOING. You will impact those in your life in ways they will never be able to express...not even in a very loooong blog. :)
God bless every single one of you.